Butterfly Kids – Damian Lewis

Damian Raises Awareness for CureEB – June 26, 2018

On June 26, 2018August 1, 2018 By Gingersnap Comments Off

Damian’s Children Throw Water Balloons at Him for ‘EB Pop, Make the Blisters Stop’ Campaign

by Damianista | Fan Fun with Damian Lewis | June 26, 2018

source: Cure EB Facebook Page

First things first.

Same wonderful charity.

Same great mission.

Same brilliant patron.

NEW NAME!

Continue reading Damian Raises Awareness for CureEB – June 26, 2018

Charity Personal and Family Life Philanthropy Summertime

Damian Takes the Stage for Cure EB Initiatives – May 11, 2018

On May 11, 2018August 1, 2018 By Gingersnap Comments Off

Patron of the ‘Cure EB’ Charity

by Gingersnap | damian-lewis.com | May 11, 2018

Source: CureEB

Damian took to the stage to talk to Cure EB friends and supporters about fundraising initiatives to raise awareness for Epidermolysis Bullosa at the House of Lords on Friday, May 11, 2018. In addition, Professor McGrath and Professor Hovnanian spoke about Epidermolysis Bullosa research and developments in current clinical projects.

Damian is a proud patron of the charity Cure EB.org, formally known as Sohana Research Fund. Sohana Collins is a young teenager who was born with recessive dystrophic epidermolysis bullosa (RDEB or EB), which means she lacks the protein that holds her skin together. Children with EB have extremely fragile skin and they are sometimes called “butterfly children.” For more information about the charity and organization, follow them on Twitter, visit them on Facebook or donate here.

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#cureeb #damianlewis #houseoflords #scientistsaresuperheroes

A post shared by CauseCommunications (@causecommunications) on May 11, 2018 at 2:23pm PDT

View this post on Instagram

Out and about with my @olympusuk @olympus_pengeneration with this guy @lewis_damian supporting a charity close to my heart @cureeb #houseoflords catching up on the major research that #cureeb are doing – #damianlewis got his eye on my #penf #olympus “loving that camera Debs” . #photocredit @haleparkweddings #candidahickman . . . . . . . . . #cureeb #skin #eb #patron #damianlewis #penf #olympus_pen #olympusuk #cureeb #chairty #event #research

A post shared by Debbi Clark (@debbiclarkphotography) on May 18, 2018 at 2:54am PDT

Continue reading Damian Takes the Stage for Cure EB Initiatives – May 11, 2018

Charity Media Philanthropy Print Media

Damian Lewis Attends GFI Charity Day for Sohana Research Fund/Cure EB – Sept 11, 2017

On September 11, 2017July 14, 2018 By Gingersnap Comments Off

On the Trading Floor for a Good Cause

by Damianista | Fan Fun with Damian Lewis | September 11, 2018

We all know Damian Lewis is a proud patron of Cure EB, formally Sohana Research Fund. Damian ROCKED the trading floor on Charity Day in 2014 picking up the phones to help raise money for Sohana Research Fund/Cure EB as well as Great Ormond Street Hospital Children’s Charity.

And today he was BACK on the trading floor, this time at GFI Group, now a division of BGC partners, representing Cure EB/Sohana Research Fund to help raise funds and find a cure for Epidermolysis Bullosa, to make the world a better place for the bravest girl he has ever known and all the butterfly kids out there.