Categories Charity Holiday Personal and Family Life Philanthropy

Giving Tuesday – Nov 27, 2018

Cure EB: The Big Give Christmas Challenge

by Damianista | Fan Fun with Damian Lewis | November 27, 2018

Today is Giving Tuesday! It is a a global day of giving we celebrate on the Tuesday after Thanksgiving and kick off the charitable season! So it’s time to be thankful for all the good stuff in our lives and focus on our holiday giving.

Well, most of you know Damian Lewis is a proud patron of Cure EB.

Damian Lewis with Sohana and her mother Sharmila at BGC Charity Day 2014, source: Sohana Research Fund

Sohana Collins is a 15 year old teenager who was born with Recessive Dystropic Epidermolysis Bullosa (RDEB) which means she lacks the protein that holds her skin together. Kids with RDEB have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Besides, they are under extra risk to develop skin cancer later in life and their life expectancy is not very long. Sohana’s parents Sharmila and James Collins founded Cure EB to raise awareness as well as funds for research to ultimately have a cure for this terrible skin condition.

Here is what Sohana says about EB.

Continue reading Giving Tuesday – Nov 27, 2018

Categories Charity Helen Personal and Family Life Philanthropy

Damian and Helen will Join This Year’s GFI Charity Day – Sep 1, 2018

On the Trading Floor Again for a Good Cause

by Gingersnap | damian-lewis.com | September 1, 2018

Damian will be joining the trading floor for this year’s GFI Charity Day 2018 in support of and to raise funds for Cure EB. Epidermolysis Bullosa is a genetic skin blistering condition that affects over 500,000 people around the world. It has a devastating impact on sufferers and their families. It is unrelenting in its pain and the distress it causes. Because EB is considered a rare condition, it does not attract government funding. Cure EB.org has a chance to make a difference to an incredibly painful, disfiguring and ultimately fatal condition.

Charity Day 2018 will take place on Tuesday, September 11 at GFI’s offices in New York City.

But that’s not all. Guess who will also be there?

Continue reading Damian and Helen will Join This Year’s GFI Charity Day – Sep 1, 2018

Categories Charity Philanthropy Summertime Supported Causes Video

Damian Raises Awareness for CureEB – June 26, 2018

Damian’s Children Throw Water Balloons at Him for ‘EB Pop, Make the Blisters Stop’ Campaign

by Damianista | Fan Fun with Damian Lewis | June 26, 2018

source: Cure EB Facebook Page

First things first.

Same wonderful charity.

Same great mission.

Same brilliant patron.

NEW NAME!

Continue reading Damian Raises Awareness for CureEB – June 26, 2018