Cure EB: The Big Give Christmas Challenge
by Damianista | Fan Fun with Damian Lewis | November 27, 2018
Today is Giving Tuesday! It is a a global day of giving we celebrate on the Tuesday after Thanksgiving and kick off the charitable season! So it’s time to be thankful for all the good stuff in our lives and focus on our holiday giving.
Well, most of you know Damian Lewis is a proud patron of Cure EB.
Damian Lewis with Sohana and her mother Sharmila at BGC Charity Day 2014, source: Sohana Research Fund
Sohana Collins is a 15 year old teenager who was born with Recessive Dystropic Epidermolysis Bullosa (RDEB) which means she lacks the protein that holds her skin together. Kids with RDEB have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Besides, they are under extra risk to develop skin cancer later in life and their life expectancy is not very long. Sohana’s parents Sharmila and James Collins founded Cure EB to raise awareness as well as funds for research to ultimately have a cure for this terrible skin condition.
Here is what Sohana says about EB.
Continue reading Giving Tuesday – Nov 27, 2018
On the Trading Floor for CureEB and Sir Hubert von Herkomer Arts Foundation
by Gingersnap | damian-lewis.com | September 11, 2018
Damian makes trading look easy as he participates in the 14th annual GFI/BGC Charity Day 2018 on Tuesday, September 11, 2018 in London for CureEB and the Sir Hubert von Herkomer Arts Foundation. He stated,
“Axe is gonna bring some insider info to the floor to really crank those trades.”
First up was GFI Charity Day where Damian hit the trading floor for CureEB. CureEB is passionate about medical research and clinical trials that will help lead to treatments and a cure for Epidermolysis Bullosa, a severe genetic skin condition that leads to blistering and skin loss at the slightest friction. Children with the condition are often referred to as ‘Butterfly Children’ as their skin is said to be as fragile as a butterfly’s wings. To learn more about the CureEB Butterfly Run on September 30, click here.
Next up was BGC Charity Day where both Damian and Helen wowed the brokers for Sir Hubert von Herkomer Arts Foundation, a foundation dedicated to ensuring that every child is given a chance to connect with and express their inner artist in a time when funding for the arts are squeezed out of the mainstream curriculum.
Here are a couple of videos of today’s event:
Continue reading GFI/BGC Charity Day 2018 – Sept 11, 2018
On the Trading Floor Again for a Good Cause
by Gingersnap | damian-lewis.com | September 1, 2018
Damian will be joining the trading floor for this year’s GFI Charity Day 2018 in support of and to raise funds for Cure EB. Epidermolysis Bullosa is a genetic skin blistering condition that affects over 500,000 people around the world. It has a devastating impact on sufferers and their families. It is unrelenting in its pain and the distress it causes. Because EB is considered a rare condition, it does not attract government funding. Cure EB.org has a chance to make a difference to an incredibly painful, disfiguring and ultimately fatal condition.
Charity Day 2018 will take place on Tuesday, September 11 at GFI’s offices in New York City.
But that’s not all. Guess who will also be there?
Continue reading Damian and Helen will Join This Year’s GFI Charity Day – Sep 1, 2018
Damian’s Children Throw Water Balloons at Him for ‘EB Pop, Make the Blisters Stop’ Campaign
by Damianista | Fan Fun with Damian Lewis | June 26, 2018
source: Cure EB Facebook Page
First things first.
Same wonderful charity.
Same great mission.
Same brilliant patron.
Continue reading Damian Raises Awareness for CureEB – June 26, 2018
Patron of the ‘Cure EB’ Charity
by Gingersnap | damian-lewis.com | May 11, 2018
Damian took to the stage to talk to Cure EB friends and supporters about fundraising initiatives to raise awareness for Epidermolysis Bullosa at the House of Lords on Friday, May 11, 2018. In addition, Professor McGrath and Professor Hovnanian spoke about Epidermolysis Bullosa research and developments in current clinical projects.
Damian is a proud patron of the charity Cure EB.org, formally known as Sohana Research Fund. Sohana Collins is a young teenager who was born with recessive dystrophic epidermolysis bullosa (RDEB or EB), which means she lacks the protein that holds her skin together. Children with EB have extremely fragile skin and they are sometimes called “butterfly children.” For more information about the charity and organization, follow them on Twitter, visit them on Facebook or donate here.
Continue reading Damian Takes the Stage for Cure EB Initiatives – May 11, 2018