Damian took to the stage to talk to Cure EB friends and supporters about fundraising initiatives to raise awareness for Epidermolysis Bullosa at the House of Lords on Friday, May 11, 2018. In addition, Professor McGrath and Professor Hovnanian spoke about Epidermolysis Bullosa research and developments in current clinical projects.
Damian is a proud patron of the charity Cure EB.org, formally known as Sohana Research Fund. Sohana Collins is a young teenager who was born with recessive dystrophic epidermolysis bullosa (RDEB or EB), which means she lacks the protein that holds her skin together. Children with EB have extremely fragile skin and they are sometimes called “butterfly children.” For more information about the charity and organization, follow them on Twitter, visit them on Facebook or donate here.