Damian took to the stage to talk to Cure EB friends and supporters about fundraising initiatives to raise awareness for Epidermolysis Bullosa at the House of Lords on Friday, May 11, 2018. In addition, Professor McGrath and Professor Hovnanian spoke about Epidermolysis Bullosa research and developments in current clinical projects.
Damian is a proud patron of the charity Cure EB.org, formally known as Sohana Research Fund. Sohana Collins is a young teenager who was born with recessive dystrophic epidermolysis bullosa (RDEB or EB), which means she lacks the protein that holds her skin together. Children with EB have extremely fragile skin and they are sometimes called “butterfly children.” For more information about the charity and organization, follow them on Twitter, visit them on Facebook or donate here.
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On the Trading Floor for a Good Cause
by Damianista | Fan Fun with Damian Lewis | September 11, 2018
We all know Damian Lewis is a proud patron of Cure EB, formally Sohana Research Fund. Damian ROCKED the trading floor on Charity Day in 2014 picking up the phones to help raise money for Sohana Research Fund/Cure EB as well as Great Ormond Street Hospital Children’s Charity.
And today he was BACK on the trading floor, this time at GFI Group, now a division of BGC partners, representing Cure EB/Sohana Research Fund to help raise funds and find a cure for Epidermolysis Bullosa, to make the world a better place for the bravest girl he has ever known and all the butterfly kids out there.
Damian Lewis representing Sohana Research Fund at GFI Charity Day, September 11, 2017 – Source: Getty