Written By GingersnapComments Off on Stick Out Your Tongue at EB – July 5, 2016
Stick out your tongue out at EB because Sohana and other EB kids can’t. Due to blistering and scarring in her mouth, which makes eating painful, Sohana cannot stick out her tongue. She has lived with the pain of EB for all her life and before she turns 14, we are asking you to join our campaign and “Stick out your tongues at EB.” Text CURE to 70300 to give £3 or SOHANA to 70500 to give £5. For more information, visit Sohana Research Fund.
Written By mokulenComments Off on Damian’s New Tongue Twister
Damian’s done another #EBtonguetwister in support of the Sohana Research Fund. Sohana Research Fund is a charity dedicated towards raising money for research into finding a cure for the devastating genetic skin condition Epidermolysis Bullosa.
Written By GingersnapComments Off on Damian Interviews Professor John McGrath About EB – Feb 16, 2015
SRF patron Damian Lewis interviews Professor John McGrath from Guy’s and St Thomas’s NHS Trust, Kings College, London to learn more about EB.
Epidermolysis Bullosa is a genetic skin blistering condition that affects over 500,000 people around the world, but very few people have heard of it. Those who have realise what a devastating impact it has on sufferers and their families. It is unrelenting in its pain and unrelenting in the distress it causes. – Sohana Research Foundation
They’ll be raising funds for the organisation, which helps children and young people in London who need the friendship and support of a mentor.
Pryce will be singing two numbers made famous by the Ink Spots — Don’t Get Around Much Anymore and I Don’t Wanna Set The World On Fire.
Tom Hiddleston (busy rehearsing Coriolanus for the Donmar, about which I’m hearing great things) will give us his rendition of The Bare Necessities, while Homeland star Damian Lewis will sing On The Road To Morocco. Why? Because he’s just been filming there.
Janie Dee and Celia Imrie will perform songs from their cabaret acts. A seven-piece band will accompany all the artistes.