Tag: Epidermolysis Bullosa

Categories Charity Gallery Personal and Family Life Philanthropy

Damian Lewis Supports BGC Charity Day 2023

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On the Trading Floor for Cure EB and HvH Arts Foundation

by Gingersnap | damian-lewis.com | September 11, 2023

Damian makes trading look easy as he participates in the annual BGC Charity Day 2023 on Monday, September 11, 2023 at Canary Wharf located at One Churchill Place in London, England for CureEB (alongside founder Sharmila Collins) and Sir Hubert von Herkomer Arts Foundation (alongside Ambassador Sadie Frost and CEO Debbi Clark). He was among other celebrities helping raise money for various charities for the 22nd anniversary of 9/11.

The annual Charity Day supports BGC Partners and it’s affiliated companies Cantor Fitzgerald and GFI Group and all profits made from trades today will go to hundreds of charities across the globe. In addition to BGC’s offices in London, Charity Day 2023 took place across the firm’s international offices including, New York, London, Paris, Singapore, Hong Kong, Sao Paulo and Sydney. View more photos from the event in our Gallery.

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Categories Charity Personal and Family Life Philanthropy

Damian Lewis To Support BGC Charity Day 2023

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Time to Make Some Calls for Charity Day

by Gingersnap | damian-lewis.com | September 6, 2022

HvH Arts Foundation announced on social media today that their Patron Damian Lewis will be back on the trading floor this year to support their charity at BGC Charity Day 2023 with Ambassador Sadie Frost and CEO Debbi Clark. Damian will also raise funds for CureEB as Patron of that charity, alongside founder Sharmila Collins. He is scheduled to participate in the 19th annual BGC Charity Day on Monday, September 11, 2023 at Canary Wharf located at One Churchill Place in London, England.

Damian raises money for two local organizations: The HvH Arts Foundation, a foundation near to Helen McCrory’s heart, provides free courses designed to deliver a route through the often prohibitive costs that comes with studying the arts for young people, as well as free after-school, weekend, and holiday tuition for vulnerable children and youth. Donations support their summer holiday programs which provides art, music, photography, film, sculpture, illustration, dance and drama workshops every day during summer break, and helps develop their Music Mentoring Project that supports young gifted and talented musicians with resources associated with live band or music studio. CureEB is an organization that supports those affected by epidermolysis bullosa, a severe genetic skin condition that leads to blistering and skin loss at the slightest friction. Children with the condition are often referred to as ‘Butterfly Children’ as their skin is said to be as fragile as a butterfly’s wings.

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Categories Charity Gallery Personal and Family Life Philanthropy

Damian Lewis Supports BGC Charity Day 2022

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On the Trading Floor for Cure EB and HvH Arts Foundation

by Gingersnap | damian-lewis.com | September 29, 2022

Damian makes trading look easy as he participates in the 18th annual BGC Charity Day 2022 on Thursday, September 29, 2022 at Canary Wharf located at One Churchill Place in London, England for CureEB and the Sir Hubert von Herkomer Arts Foundation. He was among other celebrities helping raise money for various charities for the 21st anniversary of 9/11. The annual Charity Day supports BGC Partners and it’s affiliated companies Cantor Fitzgerald and GFI Group and all profits made on trades today will go to hundreds of charities across the globe. In addition to BGC’s offices in London, Charity Day 2022 took place across the firm’s international offices including, New York, London, Paris, Singapore, Hong Kong, Sao Paulo and Sydney.

To view more photos of the event, please visit our Gallery here. We will add more photos as they come in so please check back! More about the charities:

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Categories Charity Personal and Family Life Philanthropy

Damian Lewis To Support BGC Charity Day 2022

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Time to Make Some Calls

by Gingersnap | damian-lewis.com | August 31, 2022

UPDATE: Due to the passing of Queen Elizabeth II and the 10-day mourning period in the UK, this event was rescheduled for Thursday, September 29, 2022.

HvH Arts Foundation announced today on Instagram that their Patron Damian Lewis and Ambassador Sadie Frost will be back on the trading floor this year to support their charity at BGC Charity Day 2022. And Damian will also raise funds for CureEB as Patron of that charity. He is scheduled to participate in the 18th annual BGC Charity Day on Monday, September 12, 2022 at Canary Wharf located at One Churchill Place in London, England.

Damian raises money for two local organizations – CureEB which supports those affected by epidermolysis bullosa, a severe genetic skin condition that leads to blistering and skin loss at the slightest friction. Children with the condition are often referred to as ‘Butterfly Children’ as their skin is said to be as fragile as a butterfly’s wings. And the HvH Arts Foundation, a foundation near to Helen McCrory’s heart that is dedicated to ensuring every child is given a chance to connect with and express their inner artist in a time when funding for the arts are squeezed out of the mainstream curriculum.

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Categories Appearances Charity Personal and Family Life Philanthropy

Damian Lewis to Present Trophies at Butterfly Run

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It’s Time to Fly!

by Gingersnap | damian-lewis.com | August 12, 2022

UPDATE: On Saturday, September 24 it was announced that Damian will be unable to attend this event due to unforeseen circumstances.

Damian will be presenting the winners’ trophies at CureEB’s Butterfly Run this year. After a break due to the pandemic, CureEB is delighted to invite the public back to their Butterfly Run at Olympic Park in London on Sunday, September 25, 2022. The charity encourages as many people of all abilities to run, walk or wheel in the 1k, 5k or 10k race to help raise vital funds to cure EB. CureEB’s Butterfly Run is a celebration of inclusivity!

CureEB funds medical research to find a cure for all types of epidermolysis bullosa (EB), a severe genetic skin condition that leads to blistering and skin loss at the slightest friction. Children with the condition are often referred to as ‘Butterfly Children’ as their skin is said to be as fragile as a butterfly’s wings.

You can make a donation or raise sponsorship at their Just Giving page here.
For more information, please visit CureEB’s website here.

Categories Charity Personal and Family Life Philanthropy Print Media

Damian Lewis Urges Fans to Sponsor CureEB Marathon Runner

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Regent’s Park Marathon for CureEB

by Staff | NY Times Post | October 1, 2021

Damian Lewis urges fans to sponsor mum running London marathon to fund research into daughter’s rare genetic disorder. Mum Sharmila Collins is running London marathon on Sunday, October 3, 2021 around Regent’s Park to fund research for her 19-year-old daughter’s rare genetic disorder which causes her skin to wound and blister. This will be her twelfth marathon for her daughter, who suffers from Epidermolysis Bullosa (EB).

Sharmila, the founder of the charity CureEB, is desperately looking for a cure for her daughter Sohana’s devastatingly painful genetic skin disorder.

And despite saying she “hates running,” the mum is determined to keep going because she “hates EB more.”

Supporting the cause, Billions star Damian Lewis said, “I am extremely proud to be a patron of CureEB. The pain Sohana has to live with daily is unimaginable.”

“Her condition will worsen and we now have a race against the clock to find and fund effective treatment.” Sharmila is incredibly driven and relentlessly focused on improving not only her daughter’s life but also those of other children with this terrible condition. She has raised millions of pounds for research into EB, at times single-handedly. It’s hard enough to run one marathon but 12 in a year is extraordinary, particularly when Sharmila works so hard every day to find a cure for EB. I am in awe of her. Please sponsor Sharmila and help change the lives of these children and young people.””

If you’d like to sponsor, please donate to CureEB on their Just Giving page here

If text giving is easier, please text CURE to 70300 to give £3. Or you can text CURE 5 to give £5 and CURE 10 for £10.

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Categories Charity Gallery Helen Personal and Family Life Philanthropy

Damian Lewis Supports BGC Charity Day 2021

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On the Trading Floor for CureEB and HvH Arts Foundation

by Gingersnap | damian-lewis.com | September 10, 2021

Damian makes trading look easy as he participates in the 17th annual BGC Charity Day 2021 on Friday, September 10, 2021 at Canary Wharf located at One Churchill Place in London, England for CureEB and the Sir Hubert von Herkomer Arts Foundation. He was among other celebrities, including Mayor of London Sadiq Khan, helping raise money for various charities ahead of the 20th anniversary of 9/11. The annual Charity Day supports BGC Partners and it’s affiliated companies Cantor Fitzgerald and GFI Group and all profits made on trades today will go to charities including Blood Cancer UK, Help for Heroes, The Pret Foundation and Wellbeing for Women. In addition to BGC’s offices in London, Charity Day 2021 took place across the firm’s international offices including, New York, London, Paris, Singapore, Hong Kong, Sao Paulo and Sydney.

To view more photos of the event, please visit our Gallery here. We will add more photos as they come in throughout the day. Please check back! In addition, Damian was a guest on today’s edition of Ian King Live for Sky News. See  three videos of the segment below, plus two additional videos from HvH Arts:

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Categories Charity Helen Personal and Family Life Philanthropy Video

Heartfelt Message From Damian on BGC Charity Day – Sep 11, 2020

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Ambassador for Charity

by Gingersnap | damian-lewis.com | September 11, 2020

Damian sent two heartfelt messages, appealing to the public on behalf of Cure EB and to cheer on brokers for Sir Hubert von Herkomer Arts Foundation on Friday September 11, 2020 to help raise funds for BGC Charity Day and we have both videos below!

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Categories Charity Helen Personal and Family Life Philanthropy

Damian and Helen will Join This Year’s BGC Charity Day – Sep 9, 2020

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It’s a Team Effort on the Virtual Trading Floor

by Gingersnap | damian-lewis.com | September 9, 2020

On Friday September 11, 2020 BGC Partners will hold its 16th Annual Charity Day to commemorate colleagues lost in the World Trade Center attacks. Damian will be joining the VIRTUAL London trading floor this year in support of Cure EB and Helen  will help raise funds for Sir Hubert von Herkomer Arts Foundation. Both Damian and Helen assist each other’s fundraising efforts on Charity Day! Check back with us this Friday for any news or developments. Hopefully there will be pictures! See the confirmation tweets:

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Categories Charity Philanthropy Video

Funding Freedom from EB – July 8, 2020

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Cure EB

Damian plus Sohana and her family explain what funding research means to families living with Epidermolysis Bullosa. With treatment trials started there is a real chance to improve the lives of children who are really suffering.

Please visit Cure EB.org here or their Just Giving page here.

Cure EB (formerly Sohana Research Fund) exists to treat and cure epidermolysis bullosa an inherited genetic skin condition that leads to blistering and skin loss with the mildest trauma. It is “Hard to say. Hell to live with” and children and adults with the condition live in constant pain associated with the burn like wounds that occur. The intense pain and repeated damage leads to progressive disability and severe forms are life shortening due to a particularly aggressive skin cancer that develops in early adult hood. EB children and adults have tremendous courage and resilience which helps them cope with the unremitting pain – but what they want most is to have what most of us take for granted – a pain free life.

Categories Charity Gallery Helen Philanthropy

BGC/GFI Charity Day 2019 – Sept 11, 2019

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On the Trading Floor for CureEB and Sir Hubert von Herkomer Arts Foundation

by Gingersnap | damian-lewis.com | September 11, 2019

Damian makes trading look easy as he participates in the 15th annual BGC Charity Day 2019 on Wednesday, September 11, 2019 in London, England for CureEB and the Sir Hubert von Herkomer Arts Foundation.

First up was GFI Charity Day where Damian hit the trading floor for CureEB. CureEB is passionate about medical research and clinical trials that will help lead to treatments and a cure for Epidermolysis Bullosa, a severe genetic skin condition that leads to blistering and skin loss at the slightest friction. Children with the condition are often referred to as ‘Butterfly Children’ as their skin is said to be as fragile as a butterfly’s wings.

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Categories Charity Holiday Personal and Family Life Philanthropy

Giving Tuesday – Nov 27, 2018

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Cure EB: The Big Give Christmas Challenge

by Damianista | Fan Fun with Damian Lewis | November 27, 2018

Today is Giving Tuesday! It is a a global day of giving we celebrate on the Tuesday after Thanksgiving and kick off the charitable season! So it’s time to be thankful for all the good stuff in our lives and focus on our holiday giving.

Well, most of you know Damian Lewis is a proud patron of Cure EB.

Damian Lewis with Sohana and her mother Sharmila at BGC Charity Day 2014, source: Sohana Research Fund

Sohana Collins is a 15 year old teenager who was born with Recessive Dystropic Epidermolysis Bullosa (RDEB) which means she lacks the protein that holds her skin together. Kids with RDEB have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Besides, they are under extra risk to develop skin cancer later in life and their life expectancy is not very long. Sohana’s parents Sharmila and James Collins founded Cure EB to raise awareness as well as funds for research to ultimately have a cure for this terrible skin condition.

Here is what Sohana says about EB.

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