Written By GingersnapComments Off on Heartfelt Message From Damian on BGC Charity Day – Sep 11, 2020
Ambassador for Charity
by Gingersnap | damian-lewis.com | September 11, 2020
Damian sent two heartfelt messages, appealing to the public on behalf of Cure EB and to cheer on brokers for Sir Hubert von Herkomer Arts Foundation on Friday September 11, 2020 to help raise funds for BGC Charity Day and we have both videos below!
Written By GingersnapComments Off on Damian and Helen will Join This Year’s BGC Charity Day – Sep 9, 2020
It’s a Team Effort on the Virtual Trading Floor
by Gingersnap | damian-lewis.com | September 9, 2020
On Friday September 11, 2020 BGC Partners will hold its 16th Annual Charity Day to commemorate colleagues lost in the World Trade Center attacks. Damian will be joining the VIRTUAL London trading floor this year in support of Cure EB and Helen will help raise funds for Sir Hubert von Herkomer Arts Foundation. Both Damian and Helen assist each other’s fundraising efforts on Charity Day! Check back with us this Friday for any news or developments. Hopefully there will be pictures! See the confirmation tweets:
Written By GingersnapComments Off on Funding Freedom from EB – July 8, 2020
Damian plus Sohana and her family explain what funding research means to families living with Epidermolysis Bullosa. With treatment trials started there is a real chance to improve the lives of children who are really suffering.
Please visit Cure EB.org here or their Just Giving page here.
Cure EB (formerly Sohana Research Fund) exists to treat and cure epidermolysis bullosa an inherited genetic skin condition that leads to blistering and skin loss with the mildest trauma. It is “Hard to say. Hell to live with” and children and adults with the condition live in constant pain associated with the burn like wounds that occur. The intense pain and repeated damage leads to progressive disability and severe forms are life shortening due to a particularly aggressive skin cancer that develops in early adult hood. EB children and adults have tremendous courage and resilience which helps them cope with the unremitting pain – but what they want most is to have what most of us take for granted – a pain free life.
First up was GFI Charity Day where Damian hit the trading floor for CureEB. CureEB is passionate about medical research and clinical trials that will help lead to treatments and a cure for Epidermolysis Bullosa, a severe genetic skin condition that leads to blistering and skin loss at the slightest friction. Children with the condition are often referred to as ‘Butterfly Children’ as their skin is said to be as fragile as a butterfly’s wings.
Written By GingersnapComments Off on Giving Tuesday – Nov 27, 2018
Cure EB: The Big Give Christmas Challenge
by Damianista | Fan Fun with Damian Lewis | November 27, 2018
Today is Giving Tuesday! It is a a global day of giving we celebrate on the Tuesday after Thanksgiving and kick off the charitable season! So it’s time to be thankful for all the good stuff in our lives and focus on our holiday giving.
Well, most of you know Damian Lewis is a proud patron of Cure EB.
Damian Lewis with Sohana and her mother Sharmila at BGC Charity Day 2014, source: Sohana Research Fund
Sohana Collins is a 15 year old teenager who was born with Recessive Dystropic Epidermolysis Bullosa (RDEB) which means she lacks the protein that holds her skin together. Kids with RDEB have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Besides, they are under extra risk to develop skin cancer later in life and their life expectancy is not very long. Sohana’s parents Sharmila and James Collins founded Cure EB to raise awareness as well as funds for research to ultimately have a cure for this terrible skin condition.