Categories Charity Personal and Family Life Philanthropy Print Media

Damian Lewis Urges Fans to Sponsor CureEB Marathon Runner

Regent’s Park Marathon for CureEB

by Staff | NY Times Post | October 1, 2021

Damian Lewis urges fans to sponsor mum running London marathon to fund research into daughter’s rare genetic disorder. Mum Sharmila Collins is running London marathon on Sunday, October 3, 2021 around Regent’s Park to fund research for her 19-year-old daughter’s rare genetic disorder which causes her skin to wound and blister. This will be her twelfth marathon for her daughter, who suffers from Epidermolysis Bullosa (EB).

Sharmila, the founder of the charity CureEB, is desperately looking for a cure for her daughter Sohana’s devastatingly painful genetic skin disorder.

And despite saying she “hates running,” the mum is determined to keep going because she “hates EB more.”

Supporting the cause, Billions star Damian Lewis said, “I am extremely proud to be a patron of CureEB. The pain Sohana has to live with daily is unimaginable.”

“Her condition will worsen and we now have a race against the clock to find and fund effective treatment.” Sharmila is incredibly driven and relentlessly focused on improving not only her daughter’s life but also those of other children with this terrible condition. She has raised millions of pounds for research into EB, at times single-handedly. It’s hard enough to run one marathon but 12 in a year is extraordinary, particularly when Sharmila works so hard every day to find a cure for EB. I am in awe of her. Please sponsor Sharmila and help change the lives of these children and young people.””

If you’d like to sponsor, please donate to CureEB on their Just Giving page here

If text giving is easier, please text CURE to 70300 to give £3. Or you can text CURE 5 to give £5 and CURE 10 for £10.

Continue reading Damian Lewis Urges Fans to Sponsor CureEB Marathon Runner

Categories Charity Gallery Helen Personal and Family Life Philanthropy

Damian Lewis Supports BGC Charity Day 2021

On the Trading Floor for CureEB and HvH Arts Foundation

by Gingersnap | damian-lewis.com | September 10, 2021

Damian makes trading look easy as he participates in the 17th annual BGC Charity Day 2021 on Friday, September 10, 2021 at Canary Wharf located at One Churchill Place in London, England for CureEB and the Sir Hubert von Herkomer Arts Foundation. He was among other celebrities, including Mayor of London Sadiq Khan, helping raise money for various charities ahead of the 20th anniversary of 9/11. The annual Charity Day supports BGC Partners and it’s affiliated companies Cantor Fitzgerald and GFI Group and all profits made on trades today will go to charities including Blood Cancer UK, Help for Heroes, The Pret Foundation and Wellbeing for Women. In addition to BGC’s offices in London, Charity Day 2021 took place across the firm’s international offices including, New York, London, Paris, Singapore, Hong Kong, Sao Paulo and Sydney.

To view more photos of the event, please visit our Gallery here. We will add more photos as they come in throughout the day. Please check back! In addition, Damian was a guest on today’s edition of Ian King Live for Sky News. See  three videos of the segment below, plus two additional videos from HvH Arts:

Continue reading Damian Lewis Supports BGC Charity Day 2021

Categories Charity Helen Personal and Family Life Philanthropy Video

Heartfelt Message From Damian on BGC Charity Day – Sep 11, 2020

Ambassador for Charity

by Gingersnap | damian-lewis.com | September 11, 2020

Damian sent two heartfelt messages, appealing to the public on behalf of Cure EB and to cheer on brokers for Sir Hubert von Herkomer Arts Foundation on Friday September 11, 2020 to help raise funds for BGC Charity Day and we have both videos below!

Continue reading Heartfelt Message From Damian on BGC Charity Day – Sep 11, 2020

Categories Charity Helen Personal and Family Life Philanthropy

Damian and Helen will Join This Year’s BGC Charity Day – Sep 9, 2020

It’s a Team Effort on the Virtual Trading Floor

by Gingersnap | damian-lewis.com | September 9, 2020

On Friday September 11, 2020 BGC Partners will hold its 16th Annual Charity Day to commemorate colleagues lost in the World Trade Center attacks. Damian will be joining the VIRTUAL London trading floor this year in support of Cure EB and Helen  will help raise funds for Sir Hubert von Herkomer Arts Foundation. Both Damian and Helen assist each other’s fundraising efforts on Charity Day! Check back with us this Friday for any news or developments. Hopefully there will be pictures! See the confirmation tweets:

Continue reading Damian and Helen will Join This Year’s BGC Charity Day – Sep 9, 2020

Categories Charity Philanthropy Video

Funding Freedom from EB – July 8, 2020

Cure EB

Damian plus Sohana and her family explain what funding research means to families living with Epidermolysis Bullosa. With treatment trials started there is a real chance to improve the lives of children who are really suffering.

Please visit Cure EB.org here or their Just Giving page here.

Cure EB (formerly Sohana Research Fund) exists to treat and cure epidermolysis bullosa an inherited genetic skin condition that leads to blistering and skin loss with the mildest trauma. It is “Hard to say. Hell to live with” and children and adults with the condition live in constant pain associated with the burn like wounds that occur. The intense pain and repeated damage leads to progressive disability and severe forms are life shortening due to a particularly aggressive skin cancer that develops in early adult hood. EB children and adults have tremendous courage and resilience which helps them cope with the unremitting pain – but what they want most is to have what most of us take for granted – a pain free life.